The XLH Network is currently in a year-long process of working to grow our
organization and better meet the needs of the XLH community. As part of our
initiatives, we have designed a survey in hopes of getting feedback from our
members. Your feedback is invaluable, and it will allow us to think
strategically about how to best advocate for XLH patients and families.
You can reach the survey through the following link:
https://www.surveymonkey.com/s/XLH_Network
We expect the survey to take no more than fifteen minutes of your time, and we
appreciate your input!
XLH Network